Monday, April 19, 2010

MS is a drag - part 1

So, I told you that there would be multiple posts about how much MS sucks. Here's the first.

But first, a trip in the way back machine (du-da-da-du, du-da-da-du - Mike Myers in Wayne's World).

Almost nine years ago, Aha started to have problems with his back. First it was just sore, everyone gets that. Then it was tougher to move. So he went to the family chiropractor (RIP Dr. Cynthia Izen :( ) who worked with him for a while. It was good, better and bad then better then bad, then worse then good, then better, then bad - his arms hurt, then they didn't, then they did with his back hurting then it was just his back, then it was his legs, then it was arms and legs - well you get the picture. A year later and many doctors diagnosis (which were all wrong, by the way - everything from carpel tunnel to foot issues, to everything on the earth!)

So now we're in 2001 - and Dr. I suggests that Aha go see Dr. Freundlich (seriously, that's his name - so fabulous, right?) because he "will not let you out of his office until he diagnosis' you." So, then night before his first appointment with Heir Freundlich (actually, a great guy and not first generation, but that name...right?) and we're pretty exhausted (ohhh if we only knew how exhausted we were GOING to be) and Aha's entire left side goes numb.

Wow, that can't be good at all. Not at all.

Turns out, hey, lookee that! It's not good at all!!!

Aha goes in for x-rays etc and a couple of weeks (days? hours? weeks? can't remember) later Aha calls me at my office (wow, this was the first of 10 afternoon phone calls that I would have rather never ever had in my life - the first one coming later that week - more on that later) to tell me that he has, "...the beginnings of MS".

Um, the what?

Beginnings of MS? What the hell does that mean?

Can we head it off at the pass? Can we turn it into the "ending"? What? with clearer (sort of) heads, no one has the beginnings, they either do or do not have MS.

So, the next four years are filled with good days (few), bad days (many) and a roller coaster of emotions such as: fear (loads of that), sadness (loads of that too), annoyance, rage (a lot of that), missing (there continues to be tons of that) and a lot of nothing.

You might wonder what happened in those four years. Suffice it to say, at the end of them Aha went on permanent disability and I became the sole wage earner in the house. Swell, fabulous, wonderful and all around yeah.

So, yeah for are finally through the first installment of MS is a drag. Not impressed? Not happy? Wondering where the laughs are? HA! MS is a laugh riot ("...a laugh riot" History of the World Part I) and the chuckles keep on coming.

But know this, when Aha has his good days (or hours) which are few and far between, he is the best, most fabulous husband in the whole world.

Those are my principles. If you don't like them, I have others,

Addendum to post - to be clear - I have glazed over Aha and his MS for brevity (I know, you're thinking - that was abbreviated? Trust me) But to be very clear - Aha's up and down time is completely random. He's more down than up, but takes advantage when his up time presents itself. Also, MS is sooooooo fabulous in that he looks great - all of the time. He could be in grave pain (a lot) and look like he feels fine. In no way do I want to make it sound light or better than it is. MS does suck and he is a trooper to deal with it every day.

No comments:

Post a Comment